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Center for Congenital and Inherited Disorders

Iowa legislation mandates that the Iowa Department of Public Health develop and administer the state's policy with respect to the conduct of scientific investigations and research concerning the causes, prevention, treatment, and cure of birth defects. The Center for Congenital and Inherited Disorders was established within the department in 1976 to initiate, conduct, and supervise genetic investigations and research in order to provide for the protection and promotion of the health of Iowans. Since its creation, the Center for Congenital and Inherited Disorders, in partnership with the University of Iowa and health care providers throughout the state, have developed programs that have provided Iowa with state of the art genetics health care. The programs of the Center for Congenital and Inherited Disorders address all steps of the life cycle: prenatal, neonatal, pediatric and adult.

There are seven programs within the Center for Congenital and Inherited Disorders which include: the Regional Genetic Consultation Service (RGCS), the Iowa Neonatal Metabolic Screening Program (INMSP), the Maternal and Prenatal Screening, the Iowa Registry for Congenital and Inherited Disorders, the Neuromuscular and Related Genetic Disorders Program (NMP), the Stillbirth Surveillance Project and prevention programs, and the Family Health History Initiative.

Established within the Center for Congenital and Inherited Disorders is the Congenital and Inherited Disorders Advisory Committee (CIDAC). This committee acts in an advisory capacity to the programs of the Center for Congenital and Inherited Disorders. The committee is composed of representatives from each of the programs, various professional health care groups, consumers, two legislators, and a representative of the IDPH.

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